Riverside Foods is delighted to announce our sponsorship of the Dravet Syndrome Charity Golf Day, set to take place at the prestigious Woburn Golf Club on Thursday 8th August 2024. The event is an incredible opportunity to support a meaningful cause while enjoying a day of golf on one of the finest courses in the country: the Marquess Course.
About the Dravet Syndrome Charity Golf Day
The Dravet Syndrome Charity Golf Day will take place at the Marquess Course at Woburn Golf Club on Thursday 8th August 2024. The day aims to raise funds and awareness of Dravet Syndrome.
The Marquess course at Woburn opened in 2000 and was named after the then Marquess of Tavistock. The rolling and undulating course has become known as the ‘Jewel in the Crown’, set within 200 acres of mixed woodland in Bedfordshire and Buckinghamshire.
Riverside Foods is immensely proud to be part of this event dedicated to raising awareness and funds for Dravet Syndrome. By bringing together golfers, supporters, and advocates, we hope to significantly impact the lives of those affected by this challenging condition.
Understanding Dravet Syndrome
Dravet Syndrome, also known as Severe Myoclonic Epilepsy of Infancy (SMEI), is a rare form of epilepsy that begins in the first year of life. It is characterised by prolonged seizures triggered by fever, illness, or environmental factors. Unlike other forms of epilepsy, Dravet Syndrome is resistant to many types of treatment, making it particularly difficult to manage.
Dravet Syndrome is notably resistant to many conventional epilepsy medications, but the use of specific anti-epileptic drugs, dietary modifications, and, in some cases, surgical interventions can help to control symptoms.
As the child grows, other types of seizures, including myoclonic and absence seizures, may develop. Children with Dravet Syndrome often experience developmental delays, affecting their cognitive, motor, and social abilities. Seizures associated with Dravet Syndrome can be frequent and severe, sometimes lasting for hours. They may require emergency medical intervention to control. Common triggers include elevated body temperature, stress, flashing lights, and certain medications.
What is the impact of Dravet Syndrome?
Living with Dravet Syndrome presents numerous challenges for both the individual affected and their families. The constant risk of severe seizures and the need for ongoing medical care can be overwhelming. Additionally, the developmental delays associated with the syndrome mean that children often require specialised education and support throughout their lives.
How you can help
The emotional and financial burden of Dravet Syndrome on families can be enormous as they navigate the complexities of medical treatments, therapies, and daily care. Events like the Dravet Syndrome Charity Golf Day provide much-needed resources and support for these families.
Participating in the Dravet Syndrome Charity Golf Day contributes to a cause that desperately needs attention and funding. Your support can help advance research, improve treatments, and provide support services for families affected by this condition.
Learn more about Dravet Syndrome
For more information on Dravet Syndrome, several organisations are dedicated to providing resources, support, and advocacy, including:
- Dravet Syndrome UK – A leading charity in the UK, offering support to families and funding research into better treatments.
- The Dravet Syndrome Foundation – Based in the US, this foundation focuses on research and education. Their website offers a wealth of resources.
- Epilepsy Society – Providing information and support for various forms of epilepsy, including Dravet Syndrome.
We encourage everyone to learn more about this condition and consider how they can support ongoing efforts to improve the lives of those affected by Dravet Syndrome.
Final words
We look forward to seeing you at the Dravet Syndrome Charity Golf Day at Woburn Golf Club. Together, we can make a difference and bring hope to families grappling with this challenging condition. Stay tuned for more details about the event, and thank you for your support and participation.
Thank you for your generosity and commitment to this worthy cause. Let’s make this event a resounding success and a beacon of hope for those living with Dravet Syndrome.
Riverside Foods is a leading UK supplier of high-quality halal frozen chicken and turkey products. For more details about our Christmas range, please phone +44 (0) 1691 839288 or complete our contact form.
